When Addiction Knocks…

It’s been a tough week.  Yesterday, I scurried the house looking for my old book for Alateen.  My heart is broken again.  Never would I think my children could go.  Life did not work out as planned.    The event of last week.  brought a string of mini crisises.  An $100 bill unexpectedly came.  I have to decide weather to fight this or let it go.  Money in a saving account was meant for bigger emergencies.    Times are tight right now because child care is expensive, we are working on the house, vacation is coming and the girls have a birthday party.   I locked myself out of car.  I was late to work.    I am down and disconnected.  So this is “happily ever after.”  Can I have a refund?  Another special day ruined.  Our family is the first documented case in the world to loosing my daughters to a rare disease due to a dominant carrier.  I am a young breast survivor and an infertility/recurrent pregnancy loss survivor.  Now we can add alcoholism to the list.  He is getting help.  I thought I was detached from this person.  Obviously, I am not.  I am hurt.  I hoping for better days.  I hope to find peace with the relationship.  My heart is sad.  I keep staring into space.  I am not paying attention, which is costing me a lot personally.  The oldest has 2 appointments tomorrow, which are a dental cleaning and a specialist appointment.  Hopefull, it is for a routine simple matter.  After loosing two children, I can’t handle more.  Summer is flying by and I am putting all that I am into the house.  I hope the girls birthdays are different this year.

Talk About Your Anniversary Gifts

A friend of the family gave us a generous offer.  The birthday bash for the girls is almost a little less than a month away.  He told me that his wife and him are coming over to help so I can paint the kitchen cabinets within a weekend.  I am so happy.  It’s been a struggle over 17 months of remodeling for one person to take the kids and the other one to work on the house.

My daughter right after my unpaid maternity leave asked for a mini I-pad for Christmas one year.  Literally, we were putting gifts on credit cards because I just went back to work.  Daycare expects their tuition.  Co-workers/friends got together and gave us enough money to basically pay the first week.  My oldest got her I-pad mini for Christmas.  Thanks to credit cards.   Shortly after she got it, the screen got cracked because she dropped it.  For a long time, it worked.  She left it on the floor and I stepped on it by accident.

Last year, I brought a cheap tablet to get some work done at home.  Well, our work operating system would not work on a tablet.  The operating system requires either old widows program or an Apple device for security reasons.  Here I am with this cheap tablet that wouldn’t work and I couldn’t return.  The deal was, my oldest would share the I-pad with me and use the cheap tablet, when I needed it.  It began to ghost type.  It was freaky.  For weeks, I promised I would try to fix it.  Well, every week I tried.  It looked like according to Google that my child’s Ipad was hacked.  It got so bad, that I am saying to customer service I can’t get it to do what you want because it’s so busy opening a mess of programs that I didn’t ask it too.  I took to it to a repair shop.  It ended up the screen needed to be replaced.  I got the bill.  Here goes all the money I worked so hard on the 4th of July for.  We have so many bills upcoming.  August is both the girl’s birthdays.  This year, we decided to do one party.  My oldest is getting too old.  Joy doesn’t have any outside friends.  It made sense to show off all the hard work on the house.

Well, our relationship has been disconnected for years now.  He won’t hire a babysitter.  His mother will not help.  My mother died years ago.  The tradition was…  I would start in June to beg his mother for one annual night of babysitting.  One year after multiple prompts, she forgot anyways.  We were told we were only getting an hour that year.  So, I had it with him and her.  Finally, I stopped talking about going out for our anniversary.  Why brother?  Two years later, he panicked.  Why weren’t we going out anymore for anniversary?  This year to afford a babysitter, I need to work a shift and a half.  This year, I figured to say nothing about our anniversary.  Maybe he will forget.  I said nothing.  Damn on June 30th, he says so what are we doing on our anniversary.

Please don’t think I am cold. We haven’t been close in years.  Forget it!  It caused a string of arguments Last summer, we were totally drained financially by summer camp, infant daycare and two individual birthday parties. I think I have mentioned, we are trying to move and the youngest conception bill is still not paid for. Plus, I had to hire a babysitter to cover my oldest for the days summer camp was not in session.

Friday, the Ipad was all fixed and home. We picked it up.  $140 gone.  Another words, all the money from the extra shifts.  I wasn’t with my girls for the 4th of July.  The ipad is back and it’s how I am trying to catch up at job one.  I spent the day working around the house.  Not much got done due to a bad toddler day on Saturday, which is why our friends are helping us.   Saturday night, I decided to go to a Reiki Share.  I find it refocuses me.  It’s tough work working substance abuse.  He said he didn’t mind me going. I left at 6PM.  The second, I came through the door, something was wrong.  His cell phone is laying on the ground.  He put the package of dog treats in the freezer again.  We don’t sleep in the same room, so I freaked out.  I shook him until he stirred and I knew he was okay.

I left for work on Sunday.  I texted the oldest call me.  Well, the oldest calls me in tears.  I trying to put out a bunch of crisis’s at work.  Now what is going on.  Well, she is crying because the Ipad’s tempered glass is broken now.  $140!  I wanted to scream.  Something told me not too.  I’ll figure this out later.  Working was a good excuse not to see the in-laws.  I drove to the restaurant and met him there.  He had this pretty speech all prepared.  So, I fell for it and both of us ended up crying in the car.  Well if it is a screen protector just get her a new one.  I order it.  We ran out of time.  Today, the dentist calls we forgot the appointment, but they schedule it for later.  It rearranged my day.  We ran errands. So, I told her this is her last chance with the Ipad.  She told me the truth of how it was broken.  Poor kid took the responsibility for a day now.  I got so mad that I went into confrontation mode with who broke it, which ended with an ultimatum.  My oldest begging for me to for finding her at fault.  I took pics of it because it may have lead to me taking the person to court.

My oldest is crying.  I am so upset.  The toddler drops a shoe in the car.  I didn’t bring the stroller.  My breast cancer arm is aching a short trip to the store ended up me walking the mall because the whole screen needed to be repaired again.  When the temped glass shattered, it took the screen out  again.  The toddler is persistent about walking.  You can’t let toddler walk around bare foot at a mall.  She missed a nap.  She is a mess.  One melt down after another.  I am trying to call friends and figure this out.  Basically, with all my friends, I develop a plan.  I am getting breaks here and there.  Finally, you know what.  It is the problem of the person who caused this.   Not my problem, let him fix it.   I had to call out.  All because I wanted a few hours to myself.  Heartbroken…  Supposedly, there are more promises.   Follow through this time!   Really, I deserve a social life.  A few hours to rejuvenate a few days per month…

Promises are nice words of setting intentions.  After so many broken promises, I am hoping for reality!  Show me you will follow through.  Reality is more picture perfect than those words that never lead to following through!

Setting Boundaries:

After my first daughter died & my oldest daughter Hope was born, I chose the wrong doctors for her care.  I picked the same doctor I had growing up, because his wife was involved in Avery’s care. We got a doctor with a past with my brother that I did not understand.   I did not know that my brother had been hiding his son was diagnosis with autism.  During the diagnosis process, my brother was belligerent. I guess it got so bad that police had to be called.

When Hope was born, the doctors had an agenda not her or our family.  At this one hospital cruel statements were made about my choice to carry my first daughter to term and about my family.  Never with witnesses.  I told my husband and his family.  My gut told me don’t go back.  My husband and his family persisted I was over reacting and over sensitive.  My daughter was not well cared for.  I learned a hard lesson that day.  I learned my gut instinct is always correct.  I learned to trust my internal voice and not act on public opinion.  There was a cycle of abuse in my family.  The doctors knew it and used it to their advantage for their own agenda.  Thankfully, neither Hope or I were physically harmed in the process.  Hope was too young to remember.For months afterwards, I was in emotional pain.  The message that I got as a child was driven in that I did not matter.  I took it as a time to strengthen my connection with my internal voice and increase feelings of self worth.

I got mad, when she needed a specialist because her liver enzymes were off.  The referring doctor’s office chose another doctor near that hospital.  Last weekend, I was behind in remodeling the kitchen.  My second job inpatient was busy due to the holiday and I worked 6 days straight between the two jobs.  Monday, I rushed around, but we never got back on the remodeling schedule.  I took the family to see my Aunt, who’s birthday is coming.  We surprised her with pizza for lunch after rushing around running errands.  I ran into my brother-in-law and youngest niece, while getting the pizza.  My brother and sister will have nothing to do with my kids or me.  They got to see Joy, our youngest, the first time ever.  We had 20 minutes at the mall.  I thought that day, we were getting the answer.  My husband met me.

The receptionist looks at me and says, “this appointment was canceled.  I called and told you.  You need to go to Boston for a liver specialist.” I was so angry.  I told her that she never spoke to me at all.  I went to the bathroom and told her I will call the referring doctor and handle it on my end.  I swear stream was coming from my head.  We checked all cell phones and answering machines.  No message.

On the way out the door, Hope my oldest said, “I really wanted know what was wrong with me.”  The mother alarm system went off in my head.  So we went home finishing the cookies for a bake sale and I painted at a billion miles an hour before work.  Our 4th of July holiday stunk.  I spoke with my husband what to do.  Another medical problem.  Sorry everyone is on holiday situation.    July 5th, I called and spoke to the referring doctor’s office and waited.

On July 6th, I knew what I needed to do.  I called the patient relations person and told them I was not happy.  It may just be a mistake.  I heard enough about my birth family for one life time.  For years, I teach people to stand up for themselves.  It was time, I reached out for my daughter and my myself.  For years, I was taught to make no waves.  Let them kick you and punch you, but make no waves. I should have reported them all in, when Hope was a baby!   Hopefully, I taught Hope to stand up for herself.  I said nothing mean.  Just the facts.  I have made it my life goal to reject the messages, I was taught as a child.  I am standing up for my children and myself!  Don’t care what you think of my brother or sister.  Talk to me!  Now we have another appointment on our vacation week, which I hate.  Just for one vacation, I want no doctors or house remodeling projects.  Hopefully the painting we be done before we go for a few days in the mountains.  It is growing on me.  It has been 17 months since we decided to fix the house.  I am hoping the kitchen is done before the end of July.  We have two other rooms to paint.  We talked about going into Boston and having fun after the appoitment.  Now time to stop writing and start painting again!

MOM IS READY FOR MIDDLE SCHOOL!

I already completed middle school.  I feel just handling the childcare issue was a challenge for this family.  It is illegal in my state to let a child under 13 years old stay home alone.  My daughter had difficulty in the city school system with bullying.  Some of the surrounding towns will allow your child into their school system.  Your resident city or town will be billed for your child’s tuition to attend a different town’s school.  We couldn’t afford private school due to medical bills from my breast cancer and infertility treatment.  We put our oldest’s name in the lottery.  She was turned down during first grade.  Second grade, her name was chosen.  For years now, I have had the responsibility to transport her to and from school, which was not a big deal since it was on the way to my old job.  I have had two jobs now for 5 years.  After the youngest was born, I switched jobs.  The main job is closer to Boston.    It makes my commute an hour and half to two hours every work day.

I was fearing if my main job could accommodate next year’s school schedule.  Child care for preteens really lacks.  Summer camp and infant daycare swallowed my checks whole last year.  She refused to go back to back to the art camp.  Since my oldest is going to middle school, there is no afterschool program.  My oldest can go to the library about an hour with friends and a cell phone.  That’s not childcare!  Which librarian signed up to be a childcare worker?  I am also not thrilled to learn most of the middle schoolers and high schoolers hang out at the local corner store after school.  If you read my last blog, I stood to loose income etc…  My children are always first.  I have been the one historical to take the blows at time to my vacation time.  My husband does too.

Thursday morning, my stomach was so anxious, it was eating itself!  I was overwhelmed about leaving a job that I didn’t want to leave.  We can’t afford to move.  Without the right wages, we can’t afford a house in that town.  We owe some serious money for my youngest child’s conception.  I sat down with a manager and had a conversation about look I need to know.  My other job was willing to accommodate me and possible hire me to work with children.  Instead of threatening to quit, I started the conversation with how I respected my place of work. Then, I asked I need those hours accommodated.  I cringed like any second I would be asked to leave.  Oh my!  It worked out very much in my favor.  I was offered to slowly transferred to the nursing home program.  My heart beamed with such relief!  Thank God!  I don’t need to quit!  I began to call my oldest and my husband.  I hadn’t slept in nights!  All that stress was for nothing!  I was going to sleep tonight.

Then, a message came from the babysitter, who I thought I had made it clear my hours were changing, when she accepted the job.  “I can only watch them on Wednesday and Thursday.” The text message said.  I started to sob.  I just told my boss a date.  Now it looked like I had to back track.  I ended up on my lunch break calling a mess of people for coverage for 3 weeks on Mondays & Tuesdays.  All the stress came right back!  I finally ended up hiring the teen, who does the church care for our church.  She is going to come over my house.  I just have to give her a lift home.  This has been my week.

The family daycare was getting mad about me not giving her a deposit.  She was telling me that she may be fully enrolled in shortly.  That was a whole scramble to pay for a spot for my youngest, but she is enrolled now.  She is not returning to the daycare center with multiple lead teachers.  Her behavior has been extremely frustrating at times.  I think the kids learned some bad behaviors while the toddlers had musical teachers, who never returned.  Extremely small children require attachment to their caregivers.  She wasn’t getting it there.  I hope with regular caregivers she will calm down.

I understand we can’t afford to move.  I should be painting the kitchen now.  Every day, I take care of the kids and do something to move this house forward to our ultimate goal of moving, so Hope can walk home from school.  Hopeful, now no more bumps in the childcare road.  What makes me so mad is, she knew this volunteering for babysitting.  She knew I was so in fear of loosing my job.  It was like she waited to drop a bomb on me not knowing it.  Mom is ready for middle school!  Hopeful, we are not scrambling next year.  I hope next year the blog reads.  Yay!  We are moving!

The good news is the job is going to be an opportunity to learn new skills with a population that I have had some interaction with.  I think everyone won!  August 14th, I will start my new schedule.  Right after vacation!

Frustrated

Summer was not off to a smooth start.  Joy, my youngest has toddler diarrhea.   My oldest will be going to see more specialists about her liver enzymes off and her vertigo.  We can not afford to move to the town where my daughter goes to school.  I work two jobs.  One made promises to accommodate my needing to get and pick up my oldest from school.  I am not seeing the paperwork going through.

Joy needs to be at a new daycare.  In the 17 months she was at the same one,  she had 5 different lead teachers.  I have witness one toddler push her to the ground repeatedly.  Her last day, the written was on the wall.  My oldest didn’t want to go to an art camp.  So, I hired someone who worked for the school system to babysit both the girls at a flat rate.  This person is worth more than I can afford.  Childcare takes over half my pay to pay.  I work in human services, so I can expect to earn between $30,000 and $40,000 full time.  Remember, I have been doing this 14 years.  I love the field.  I give up dreams of being rich.  I work about 30 hours per week. After fighting cancer, infertility and infant loss, I am spending time with those two girls, who I fought so hard for.

I can go to one job and quit the other. I will loose $200 a pay period.  I am trying so hard to get our family out of the 100 most violent cities in America.  There is a price difference between the city I live and the town Hope goes to school.  If I sell this house, we need a bigger mortgage to get in that town.  Chances are after all this hard work to fix my house, we can only afford a fixer upper.  We have been painting the kitchen.  We are literally tripping over stuff to remodel.  My house needs a few remodeling expenses like a new bathroom to sell it, which we can’t afford.

I am between a rock and a hard place.  There is no public transportation between the town my daughter goes to school in and where we live.  I don’t think she is quite ready to stay home by herself.  I work too far away to take a lunch break late and go pick her up.  If she returned to our city schools, she would be badly bullied.  One job is open to split shifts.  The other job made promises the paperwork didn’t show up.  When I try to talk to them, they just say it’s too far away.  That job requires a two month notice.  I sent them an email saying I need to know now.  I find myself struggling with between finances, work and parenting responsibility.

Yesterday was my daughter’s recital. I decided to reach out to my in-laws.  I finally told them how much I earn for a living and the costs of childcare.  These guys come with a warning sign, “emotionally out of order.” For years, they have caring for free my sister-in-law’s kids, who is a high paying nurse. Her former spouse scammed thousands of dollars from them.  She is their favorite.  My father-in-law pissed me off.  He said to me, “your mother did it and you will too.” Swears flooded my brain but the kids were there.  My mother died a horrible death.  She left me in care of my siblings who were abusive.  So, once again, they are not available.

This weekend has been stressful.  After many years of fighting infertility, I am very aware of my length of cycle.  It didn’t come.  I said is this a joke?  I found myself day dreaming of an accidental pregnancy, which is impossible.  Today, we tried to start a dog walking group.  No one showed.  I have been having so many difficulties with heavy bleeding and long cycles.  Last month, I made it a point to try to sleep at least 7 hours per night.  I also took vitamins. People have been telling me that I sound perimenopausal. I took a pregnancy test.  It was negative.  I flunked in the accidentally pregnancy accident department.  I found myself grieving again. I began to fantasize it was menopause and the nightmare of heavy bleeding was over.    Four days late, guess what came today.

My brain is tired from crunching the numbers.  I am worried about my relationship with others.  There is no afterschool program for Hope, who is going into middle school.  That’s about $50 per week we save.  Today, I paid the deposit for Joy to start a home daycare program that follows the school year.

Money is money.  People can never be replaced.  We have food to eat and a home.  Everyone is healthy that I am aware of.  The mother of Hope and Joy is going to have hope that an answer prevails soon and joy returns to the home.

Hope For The Best! Literally!

Monday, the phone rings.  More worry.  Now my 11 years old daughter Hope needs an abdominal ultrasound because her liver enzymes are off again.  I start freaking out. My person who is constantly inconstant is constantly inconstant.  He took Hope to the doctors during the groin injury.  Who knows what was said.  couldn’t give me 20 minutes sober to hear me out.  Again, I tried and he didn’t respond.  I sign up for a stress reduction day.  My heart is broken.  After 20 plus years of my life, you can’t find 20 minutes.

He couldn’t give me 20 minutes sober to hear me out.  Again, I tried and he didn’t respond.  I sign up for a stress reduction day.  My heart is broken.  After 20 plus years of my life, you can’t find 20 minutes.  I feel no more guilt about taking a day for myself.

Last night, I went to bed late.  My eyes opened at 5AM.  My anxiety is very high right now.  I am not sure what to do about my work schedule for my oldest Hope to go to middle school.  I am worried about the latest blood labs with her.  Her APL is high.  Bone disease?  A few articles mention rare disease and my anxiety is up.  It’s a burden to bear, when you are the only documented family to carry another rare disease.  My sense of safety is low having lost two children.  Hopefully Hope is okay.  I hope I am panicking for no good reason.  Trust Ellen? I am trying.  She has an abdominal ultrasound Monday and she sees a regular doctor Tuesday.

https://labtestsonline.org/understanding/analytes/alp/tab/test?gclid=CI-npIuss9QCFcONswodN2QDjw

Asinine With A Capital A: VSP Plan

Tuesday, the bump was removed from my ear.  It did not hurt going out as the biopsy. The bump on my ear may have been caused by my eyeglasses.  Wednesday, I wore my contacts.  My eyes dry up quick and get irritated.  Wednesday morning, my eyes are stinging on the way to work.  I take out my contacts to put a solution in.   At some point, I realize my left contact is not in.  I am on the floor on hands and knees for over an hour.  I call my eye doctor’s office.  Drive here and we will give you a new one.  I am at work 15 miles away.  I have to find an optical shop to buy one contact lens in the area of my workplace that  I could walk to.  Not one place was willing to help because I am not a patient.  I put the one lens in a dixie cup with some solution.  I was getting a major headache due  to the world one eye perfect.  This is another point in my life where I feel no one is there.  I did my job blind.  I can’t see the time.  I ran late.   It screwed up my day and my client’s day.

Of course, Wednesday was car seat installation day.   We had to buy a new one to gave the old one to the babysitter for the summer. 3/4 of my pay goes into child care for the summer for both the girls, when school is out.  It’s a placeholder for my job. So, I could only figure out to make myself an eye patch with paper and an elastic band to drive home on one contact lens.    I took the back roads home.  I drove straight home to get my eyeglasses, then the girls, drive through for dinner and straight to the police to have the car seat installed.

Today, the doctor calls. The pathology report indicates the bump on my ear was caused by pressure by either my glasses or the way I sleep.   There’s a  risk for the bump to return.   I suffered with it since mid-April.  The bump hurt.  It throbbed!  So, I called to see if I could get a new pair of eyeglasses.  I am due in October for glasses.  I was told that I couldn’t get glasses paid for through the plan.  Are they kidding?  Just buy another pair and get 20% off.  LISTEN 3/4 of my PAY IS GOING TO CHILD CARE THIS SUMMER!  I seriously doubt I afford to pay 20% off as I will be just barely taking home a quarter of my pay after childcare every 2 weeks.  There is a mortgage, a birthday party for the girls and a conception bill for my daughter’s embryo donation.

Meanwhile, it looks like I still need to figure out how to incorporate working around my oldest daughter’s school schedule at middle school.  IT IS EXTREMELY TOUGH WHEN IT IS YOU OR YOUR HUSBAND.   Where is this village that people talk about to raise a child?  Did I get gypped a village?   Two summers ago, I was mentally prepared to enter my own C-section alone, because my mother-in-law was trying to bail on watching my oldest as I gave birth.  We never ask for her to care for our children.   I wish I had this family/village to help.  Unfortunately, my mother died from some form of dementia.   We live in a city on a list called the 100 most violent cities in America. I keep trying to get my girls out of here.  IT’S THE EYEGLASSES, THE CO-PAYMENTS, GAS FOR THE CAR etc… that keeps us from buying another house and moving.  It’s like which came first the chicken or the egg. How do we get out, when bills are piling?  I could work longer if my oldest could walk home from school.  The houses in that town cost way more than my current house is worth.  I am upset and stressed.

Broken Heart:

I am suppose to be up starting the kitchen painting.  I just don’t want to paint.  It’s been about a year and a half of remodeling. My cycle came up extremely heavy and I bled heavy for 5 days, I am worried I am a little iron low.  My ear cyst gets removed Tuesday and I have been making sure iron is in my diet.

I am sad today.  For 4 years now, I have been struggling to make things right with someone.  Last December, I made some choices.  No one knows.  I am not 100% innocent on these matters.  I got talking to an old friend about how I would cut this person off completely if I could.  I told my friend I remember who he is.  He lives in active addiction.  He is not violent or out driving under the influence.  I would like to cut him off  and scare him straight to himself.  I try this once and my daughter was crying and begging him to stay.  I finally gave in. I am not really asking him to leave.  I want our relationship to remain.

Due to my choices, I have made a new friend, who has been extremely helpful.  My depression appears a lot better lately.  It is hard to smile, when you bleed 20 days average a month.  I have been really trying to sleep more because they think this connected to this.  My only remaining choice is going to raise my daughter’s anxiety.  I struggle because there maybe permanent ramifications for the intervention.  I asked for 20 minutes of his time without him being under the influence without the kids.  First night, he drank.  So, I said tonight will be the night and reminded him.  It was getting late, I thought I was in the clear.  I went to speak to him and that familiar smell was in the room.  I can’t do this tonight.  So, I got angry and told him so.  The matter got twist into  let’s talk about me smoking.  I was mad and left.  I sat starring into space in the living room.  My heart broke.  So, I have been anxious about this part of my life.  I survived cancer and buried two babies.  This is an old saying, “life is too short.” I am going back to the 12 steps.  I tossed for a bit last night.  I am a professional.  I should have the answers.  I don’t.  I need a different work schedule to  accommodate my daughter.  It feels like one of jobs has changed their minds.  I may need to quit next month.  I would loose more money.  So a lot has been on my mind.  As I often say, both kids and adults are healthy, I do have gratitude.  I need to start painting before work! I will keep praying and saving money quietly.  The intervention if it goes down will happen in the fall.

Through The Briers: A Rose Was Found!

My ear has been throbbing away since the biopsy.  After all these days of worry, good news prevailed!  The lab report was normal! Whew!  The polyps in February and this cyst on my Breast Cancer Survivor Anniversary all points to time to take better care of yourself.  Next time may not be a warning shot!  Tomorrow is the Friday before Memorial Day, my anniversary of breast cancer.  It’s raining here, but sunscreen will be top priority this summer!  Time to celebrate with walkless events with the family!

Briers For My 7th Breast Cancer Anniversary

Our family has been facing some medical issues recently.  I took a break from remodeling.  Sadly, my schedule on days off have been very booked.  The family ferret has insulinoma (caner of the pancreas).  She has required multiple trips to the vet to check her sugar levels.  My oldest daughter has been having dizzy spells.  I feel like a cab.

Since the family vacation in April, I found a lump on the top of my ear near the skin connecting to my head.  It has seriously hurt, when I wear glasses.  I thought this is a cyst.  For weeks now, I have been trying a number of home remedies to get rid of it.

I had surgery to remove a number of polyps from my uterus in February.  I was having heavy bleeding and 21 day cycles.  Last week, the heavy bleeding returned.  I got up and left stains everywhere.  So, I called the OB GYN.  They made an appointment for this week.

On the same afternoon, my phone rings again. My daughter’s doctor office called with a neurology appointment for Tuesday, which is the same day as my OB GYN appointment.  This neurology appointment is in the morning.  The OB GYN appointment is in the afternoon.  Both are hour drives in the opposite direction.  I thought no problem.

Monday was my physical.  I had been suffering with the bump on my ear for awhile.  I had to take the youngest with me, since my husband took Tuesday morning to go to my oldest daughter’s appointment.  I showed him my ear.  He felt a Ears, Nose and Throat Specialist should look at it.  He was concerned about skin cancer and if it should be biopsy.  Cancer again?

My toddler fell asleep on the drive home.  I sat in the driveway in disbelief.  My phone rings again.  The specialist can see me mid morning on Tuesday.  I felt so emotional drained.  Yes, I do have my girls and my husband.  There is just no family involved in our lives.  There isn’t an aunt or a grandmother to call for help with the kids.  It’s in these situations, I feel very isolated and alone.  (My last C-section erupted with an argument with my in-laws about who was going to take care of my oldest.  I actually mentally prepared to go into a C-section by myself with no support.) I couldn’t ask them for help.  I spoke to a few friends about the lump on my ear.  It made me feel slightly better.

Worst of all, I have been working Monday and Tuesday nights at my other job.   The neurology appointment for my daughter made me anxious.  I buried two babies due to a rare disease.  There was another part of me that knew this was routine.  My recent surgery on the polyps reminded me how alone I am.  I am running all over the place.  I got my glasses tighten.  Hope, my oldest, was anxious about the state exams and the neurologist appointment.  I promise to take her to one of her activity stores.  I spoke to my medical oncologist, who said I couldn’t have a hormonal IUD for cycle control due to my previous history of breast cancer.  Some of the IUD’s can thin and make a cycle quicker.  We also talked about my ear.

Tuesday morning at the neurologist appointment, it was a bit of a rough start.  I am staring at this genetic history form and I am tired, drained and overwhelmed.  I am telling her it’s not a good day to ask me if I am in good physical health.  Another cancer diagnosis my happen again.  Finally, I said, “I am struggling with this form.  Our family is the first documented genetic carriers of a rare disease.”  The person, we met with softened.  All sudden, I felt she got it.  Basically, Hope was diagnosis with Vertigo.  They want us to see a Ears, Nose and Throat Specialist to rule out allergies.  One appointment down. My husband asked to work from home to cover all these doctor appointments.  My toddler is very active.  He takes Hope to school.

I call my aunt, who is 80 something.  She sounds horrible and wheezy due to a cold.  I go to check on her.  I meet the Ears, Nose and Throat Specialist and explain all the appointments I am going through.  She was very understanding.  She told me that the lump looks like a cyst, but it should be biopsy.  She explained if it is cancer or not cancer, it needs to be removed only.  More good news.

I decide to drive home and drop by to see the toddler after eating lunch at my favorite bakery from my childhood memories.  I am wiped out.  I figure I better update the school nurse.  She says to me, “your daughter landed wrong on stage. She is here now.” Now, I know I have to take this kid to the walk in clinic after school.  My ear starts throbbing bad from the biopsy.

The OB GYN appointment was okay.  There is little they can do to control this bleeding.  I leave and I go to check out.  There is a couple sitting down talking with check out.  I go up to the other window a few times.  No one comes.  So, I give them their space.  All of sudden, a medical receptionist screams at me, “is someone hiding in the hall.”

So, I corrected her.  I told her, ” I am not hiding.  I have been at the window twice and no one is paying attention.” It’s been a miserable day.  I hate doctors.  I am at the end of my rope.  My ear is really throbbing.  No painkiller is touching it. When the receptionist is checking me out, I am telling her to retell me the information.   I called my boss and asked to go in to complete my work and leave early.  She agrees.  I can’t miss work since I have no vacation or sick time.

I can’t go to another doctor.  I just can’t.  So, I called my husband and told him to take the oldest to the doctor’s.  I got good news mostly.  I felt so emotionally drained today.  My oldest has a groin injury and she can not walk.  I spent half the night finding other things for our family to do this Memorial Day Weekend that require no walking.

I have come a long way since starting this blog.  I stopped complaining and I am doing things to improve my life.  I am making friends.  I am aware I can’t discuss my baby loss issues with them either.  I tried to get out once a month with my friends to take care of myself.

It was the Friday before Memorial Day that I was diagnosis with breast cancer.  It brought new meaning to LONG WEEKEND.  Today, I finally told my oldest what is going on with the ear.  It was so hard this morning because she was in so much pain and I work during the days Wednesdays through Fridays.  Even if I could stay home, she would have missed the state exams.  She had to go to school.  My ear just throbbed today due to the biopsy.  I am hoping for better days.  I am also taking this as a warning sign to take better care of myself such as count my steps, quit smoking and sleep right.