Monthly Archives: March 2018

Your Pink Elephant Is Real!

I sat through two appointments today about what to do with my youngest, who is 2 year old and having attentional/sensory issues.  This week has been a whirl wind.  I am trying to catch up after having a bad case of the stomach flu.  My oldest had an appointment too, due to her anxiety over middle school.  She is going to be going to counseling for  a bit.

It’s like this. Last fall, we paid a $1000 for the front end of my car to be rebuilt after a tire popped on the highway.  Thankfully, we walked away. I started hearing more noises lately.  It’s an inspection sticker month.  I asked them to look for the source of these noises.   I am hoping they just say your crazy lady.  I returned to get more $1000 estimates on more work to be done.

I was hoping the day of my 2 1/2 year old evaluation I was hoping to hear I was crazy too!  My gut is often correct.  The worry is setting in.  She is two and half and she needs services for attentional/sensory issues.  What is her future going to be like?  What will kindergarten be like?  I feel the guilt, the worry and the blame.

Remember something, my first daughter died from Campomelic Dysplasia.  I was a Rare Mom first.  I learned rather quickly how to advocate for Avery in the 14 weeks we knew.  It happened again.  I advocated for Addison.  Shortly later the breast cancer came.  We are not talking a rare disease or cancer.  Weather it’s migraines or sensory/attention issues, this rare mom is up for the challenge, because Avery Bravery taught me so.  Even through these are more common problems, my brain is on it!

Next week will be a little emotional for me.  It’s my birthday.  I am not grieving getting old.  I grieving my losses.  My father was extremely verbally abusive.  I knew that I was not wanted at an early age.  My mother gave me all she had.  It was my saving grace.  There is still a piece of me that makes me feel like a loser.  It is at this time a year, I miss my mom and my angel children the most.  I see what others have.  The negative thinking is having a field day in my mind. The empty parts of me light up with intensity.   My sadness has lessen compared to other years, when I would wake up in tears around my birthday.  Some days the emptiness of his words punch through.  I have plans to quietly celebrate my day.  This weekend with friends.  Next week, I will celebrate with the girls on the actual day.

Lately, my career path options has been popping up.  My resolution was to bring our family to a healthier path.  I signed papers for the school system to look at my youngest daughter.  She only has about 5 months with Early Intervention.  More time pressures on my schedule at work are possible.  This week was filled with antagonistic comments. I couldn’t fight them.  I feel like I work harder than I need too.  There are other options to make my life easier.  I don’t claim to have the perfect balance.  After Campomelic Dysplasia and Cancer, I don’t have the same priorities. Surely, there must be more options.  Life can’t be this hard.

There is a housing shortage.  All this hard work to get out of this city.  The houses without needing work are too expensive.  The thought of moving out of this house into another fixer upper depresses me.  We put so much into this house.  It may not be this year the big move.  I am hoping.  The last big project is the bathroom being redone.  No house is without work to be done.  Hopefully, we find that dream house and move on.  The other town is top preference.  I was told if my daughter could walk to a bus stop, they would consider transporting her.  Not so much is up in the air as compared to other times in my life.  I am going to hope.  I may take a plunge into a new career move.

PS-The doctor thinks Joy may have some milk protein allergy going on.   She is doing way better on milk free milk like Almond milk.  The eczema cleared up on her skin Her acid reflux meds are fine.  She recently had regular milk by accident.  Her behavior was uncontrollable and she had diarrhea.



For months, I have been struggling with someone’s addiction, raising the kids, working 2 jobs and fighting mold at home.  I have been dealing with public outages from my toddler child.  It’s Ellen’s problem.  Aw, isn’t the little girl so cute with her mother running after her.  Work harder Ellen!  Get it done!  Go chase after Joy!

When my daughter Avery died, people didn’t want to hear it or see the pain that being the first of the world.  I locked every door.  I said nothing of any importance.  I kept it polite.  I have my own way of coping with the addiction.  Some I am not proud of.  I have tried everything.  For months, I heard “don’t worry about.  She will grow out of it.”

My professional side was flagging it saying, “no, you need to do something.” I was in between two jobs.  I have been stuck in my own island of pain with a volcano ready to boil over.

Joy had her evaluation yesterday.  Yes, she needs services.  I should have trusted my gut instinct.  I have been very ill all week with a stomach bug that refuses to go away.  The doors are open in my life like this.  I continue to live on a island looking out a window and seeing what everyone else has or to take the risk.  The risk is people are not like math.  People are individuals with their own moods and behaviors.  Closing the doors, there is safety.  It’s lonely, but somewhat more predictable because I am the ship’s captain of sorts.  Close the door, we miss the opportunity to grow and become.  We are on our own fighting these feelings without experts or help.  Kind of like good luck battling the breast inside, while being the breast.

Closing the doors, the kids suffer.  Hope has anxiety.  Joy can’t follow the rules.  Avery Bravery.  I put my hand on the knob. Flinch. I swing the door open.  Here’s to Hope and Joy of life!  I feel like Elsa!   Life is about risk.  One child done.  Hope has an appointment Monday.  I Hope this brings Joy for the family.  If the door remains closed, I will never know.  Okay, I need help.  Let’s see what happens.